alpha-1 awareness

Welcome....

....to the website for all sufferers of Alpha-1 Antitrypsin Deficiency. We hope you will find this site helpful. You will find information about the condition, contacts who are ready to give you more information, social and fundraising events and how to become a member of the group.

PLEASE NOTE that this website is run by Alphas and their carers. We do our best to make the information up-to-date and accurate. HOWEVER ALWAYS consult your GP or other medical professionals.

The charity has strong links with many people and organisations including European Alpha groups, pharmaceuticals and clinicians.

Objectives of alpha-1 awareness

  • To improve understanding of alpha-1 antitrypsin deficiency (AATD) by patients
  • To publicise AATD to medical professionals
  • To link interested organisations through a website
  • To build a national network of patients
  • To become a pressure group to increase research and availability of successful treatment
  • To develop a platform for patient support

Support Alphas

How to Help

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Registered Charity No: 1125467

 

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