Alpha1 Awareness UK

Welcome....

....to the website for all sufferers of Alpha-1 Antitrypsin Deficiency. We hope you will find this site helpful. You will find information about the condition, contacts who are ready to give you more information, social and fundraising events and how to become a member of this patient support group.

PLEASE NOTE that this website is run by Alphas and their carers. We do our best to make the information up-to-date and accurate. HOWEVER ALWAYS consult your GP or other medical professionals.

Members are invited to join the forum where they read about current topics affecting Alphas and Alpha children, where they can receive advice and support and make their own views known. Go to the Forum page.

The Discovery of Alpha1-Antitrypsin

Professor Dr Sabina M. Janciauskiene has written a history of the Discovery.  new publication.

London Congress 2010

Report on the Fifth European Congress.

Next Mini Info and Lunch Day for Alphas -
9th October in Newcastle upon Tyne 

We are holding an Informal Lunch on 9th October in Newcastle, for our members in around the North East of England and maybe we will see some of our Scottish members.

The lunch is being held at the

New Northumbria Hotel
31-73 Osborne Road
Jesmond
Newcastle Upon Tyne NE2 2AN

If you are interested in attending this event then please contact the charity secretary or fill in the form on page Newcastle-Upon-Tyne.

EUROPLAN

A conference will be held in Manchester on the 16th of November as part of the EUROPLAN for national strategic plans for rare diseases. See News.

Research

We have now expanded our support for research into the causes and cures for diseases arising from the condition Alpha1 Antitrypsin Deficiency. See the Research page.

Alpha1 Testing Kits

Please go to the Testing for Alpha1 page for more details.

News and Discussion Forum

This Forum is  up and running.  It is available for members of the charity.  Please go to the Membership Page.

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The charity has strong links with many people and organisations including European Alpha groups, pharmaceuticals and clinicians.

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Reg. Charity England and Wales: 1125467, Scotland: SC041100

 

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