Alpha1 Awareness UK

Welcome to the website for all sufferers of alpha-1 antitrypsin deficiency. Here will find information about the condition, contacts who are ready to give you more information, social and fundraising events and how to become a member of this patient support group.

New Board Member

For some time Wendy Rogerson has been helping members of Alpha 1 Awareness with issues relating to Disabled Living Allowance and Employment and Support Allowance. Wendy, modestly, claims not to be an expert and to have only learned from experience with having to deal with the authorities. However, we value her work more highly and we are pleased that she has agreed to become our advisor on DLA and ESA issues.

Wendy will also be joining the Charity Board of Alpha 1 Awareness UK.

Could you, a member of your family or a friend raise money for Alpha 1 Awareness UK in the British 10K London Run on Sunday 8^th July 2012? We have 6 places for this year, also for 2013 and 2014.

The 2012 event is staged just 19 days before the start of the Olympic Games and the excitement and buzz within London at this time should make for a truly special occasion and the best British 10k London Run in its 12 year history. http://www.thebritish10klondon.co.uk

If you would like to take up one of the 6 places in the 10K run, please contact Lin Daniels, at SECRETARY or by writing to Lin at Alpha 1, PO Box 2866, Eastville, Bristol BS5 5EE.

World Spirometry Day 2012

The 2012 campaign coincides with the Olympic Games and aims to encourage people to exercise and look after their lungs regardless of their age or physical ability.

The website is www.wsd2012.org . It is a useful source of information about the various events being organised and also about the lungs and spirometry in general.

News and Discussion Forum

If you wish to become a member of the charity and help us support Alphas and their families then please go to the Membership Page.

Members are invited to join the forum where they read about current topics affecting Alphas and Alpha children, where they can receive advice and support and make their own views known. Go to the Forum page.

PLEASE NOTE that this website is run by Alphas and their carers. We do our best to make the information up-to-date and accurate. However, ALWAYS consult your GP or other medical professionals.

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The charity has strong links with many people and organisations including European Alpha groups, pharmaceuticals and clinicians.

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How to Help