Publications

Guides

Guides are informative booklets giving practical help on aspects of Alpha1 Antitrypsin Deficiency. They are size A5 and have 8 or 12 pages.

Contact info@alpha1awareness.org.uk to request a guide.  Medical professionals may request multiple copies.

 TITLE

 PURPOSE

 STATUS

 Newly Diagnosed?

for people diagnosed as having the genetic condition AATD

 available

 Your Child's Liver

for parents of children diagnosed as having the genetic condition AATD

 available

 Living with Alpha1

a lifestyle guide for people diagnosed as having the genetic condition AATD

 available

 Diagnosis and
    Treatment

for medical professionals working with people diagnosed as having the genetic condition AATD

 available

       Guides Front Pages

Young Children's Book: From A1 to ZZ

If you have an Alpha child between the ages of four and eight then you may find the booklet Alpha 1-Antitrypsin Deficiency Alphabet From A1 to ZZ a great help in explaining the condition to them.  Despite the long title the booklet is easy to read and quite upbeat. It may also be helpful to non-Alpha children in explaining the illnesses of their older relatives.

          A to ZZ Front Cover

For Children Aged 8 - 11: Not the Only Alpha-1

This book explains Alpha-1 to children who have progressed from the Alphabet book.

          Not the only Alpha-1

Information Programme

The Information Programme is designed to collect together useful documents in one place.

 FILE TO DOWNLOAD

 format

 format

 Alphas Tell Their Own Stories

doc

 pdf

 Living With Alpha1

 doc

 pdf

 Claire's Story

 doc

 

 

 

 

 Panniculitis (M)

 doc

 pdf

 AAT Levels - what the numbers mean 

 doc

 pdf

 AAT Testing Methods (M)

 doc

 pdf

 The Discovery of A1 Antitrypsin (M)

 

 pdf

Notes

doc signifies MicroSoft Word Document format
pdf signifies Adobe Acrobat format
(M) medical content

 

Verse of the day