Guides
Guides are informative booklets giving practical help on aspects of alpha-1 antitrypsin deficiency. They are size A5 and have 8 or 12 pages.
Please contact us to request a guide. Medical professionals may request multiple copies.
| Title | Purpose | Status |
|---|---|---|
| Newly Diagnosed? | for people diagnosed as having the genetic condition AATD | available |
| Your Child’s Liver | for parents of children diagnosed as having the genetic condition AATD | available |
| Living with Alpha1 | a lifestyle guide for people diagnosed as having the genetic condition AATD | available |
| Diagnosis and Treatment | for carers and medical professionals working with people diagnosed as having the genetic condition AATD | available |
Young Children’s Book: From A1 to ZZ
If you have an Alpha child between the ages of four and eight then you may find the booklet Alpha 1-Antitrypsin Deficiency Alphabet From A1 to ZZ a great help in explaining the condition to them. Despite the long title the booklet is easy to read and quite upbeat. It may also be helpful to non-Alpha children in explaining the illnesses of their older relatives.
For Children Aged 8 – 11: Not the Only Alpha-1
This book explains Alpha-1 to children who have progressed from the Alphabet book.
Information Programme (Downloads)
The Information Programme is designed to collect together useful documents in one place.
| File To Download | format | format |
|---|---|---|
| Alphas Tell Their Own Stories | doc | |
| Living With Alpha1 | doc | |
| Claire’s Story | doc | |
| Panniculitis (M) | doc | |
| AAT Levels – what the numbers mean | doc | |
| AAT Testing Methods (M) | doc | |
| The Discovery of A1 Antitrypsin (M) |
Notes
doc signifies MicroSoft Word Document format
pdf signifies Adobe Acrobat format
(M) medical content


