Weblinks
Alpha-1 the Facts
|
BBC Health site |
UK |
An explanation of alpha-1 antitrypsin deficiency on the BBC website - so it must be true! |
|
Netdoctor |
UK |
An explanation of alpha-1 antitrypsin deficiency on the UK Netdoctor site |
|
Patient UK |
UK |
...lots of good info about AATD, leaflets etc
|
|
Mayo Clinic, US |
US |
...page on alpha-1!
|
|
Australian medical site
|
AUS |
An explanation of alpha-1 antitrypsin deficiency on an Australian site. |
|
Tiscali Website |
UK |
...even the Tiscali website has something! |
Alpha-1 Lung
Alpha-1 Liver
Alpha-1 Related Conditions
Alpha-1 Support Groups
|
Alpha-1 Yahoo Group |
UK |
Yahoo Health Email Support Group. If the link does not work then just search for alpha-1 in Yahoo
|
|
MD Junction
|
US |
A community of patients, family members and friends dedicated to dealing with Antitrypsin Deficiency, together.
|
Testing Trials and Treatment
|
ADAPT
ADAPT also welcomes contact at:
The ADAPT project
Nuffield House
Queen Elizabeth Hospital
Birmingham
B15 2TH
phone: 0121-697-8257
fax:0121-697-8256
email to Rebecca Bray at Rebecca.Bray@uhb.nhs.uk
|
UK |
ADAPT (Antitrypsin Deficiency Assessment and Programme for Treatment) has been established by research doctors who have an international reputation for their research into the causes of emphysema, in collaboration with the pharmaceutical company Bayer. ADAPT’s mission is to collect information about how AAT deficiency affects you and your family. As well as being helpful to you in understanding the effects of AAT deficiency on your lungs, this information will be critical to the design of clinical studies.
|
|
Clinical Trials
|
US |
Search for clinical trials
|
Organisations
|
Alpha-1 InternationalRegistry
|
SW |
The international registry and forum for professionals
|
|
alpha-1 advocacy
|
US |
..for patient support and information
|
|
alfa-1 Denmark
|
DK |
Danish alpha-1 Patient Group
|
|
Alpha-1 Association
|
US |
Alpha-1 Association's mission is to identify those affected by Alpha-1 Antitrypsin Deficiency and to improve the quality of their lives through support, education and advocacy.
|
|
Alpha Net
|
US |
AlphaNet's mission is to improve the lives of those affected with Alpha-1 Antitrypsin Deficiency by creating and disseminating a wide range of expert disease management services, while providing significant contributions toward research for a cure.
|
|
Alpha-1 Foundation
|
US |
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.
|
|
Alpha-1 Kids |
US |
Alpha-1 Kids is an organization developed by affected families and their physicians to provide information, support and awareness. |
|
Alpha-1 UK
|
UK |
...a UK support group. You can join an email support group here.
|
|
European Respiratory Society
|
EU |
...what it says on the tin!
|
|
National Jewish COPD Program
|
US |
..a Jewish medical website. |
|
Outbikin
|
US |
Team alpha |
|
Spiderspun
|
US |
...US site with Blogs, Info etc
|
Journals
|
John Doyle's Website
|
UK |
...check it out, from someone who knows it from the inside!
|
|
The Lancet |
UK |
The UK based medical journal, founded by in 1823. Free registration and access to most of the articles online.
|
Transplant
Wellbeing
Disability Help and Advice
|
Pluss
|
UK |
Pluss provides high quality employment, training and equipment for disabled people
|
|
EnabledAlready |
UK |
.......a dating and friendship site for those people with disabilities.
|
|