Rome 2007

International alpha-1 organisations

AATD is a relatively common genetic disorder that was identified in Sweden in 1962. It is known by some colloquially as the "Viking disease" as it appears to be prevalent in areas of northern Europe visited by Vikings.

Many countries have support groups. Here is a list of some of them.

Country/Organisation Contact
Australia

http://www.alpha1.org.au/

Austria http://www.alpha1-oesterreich.at/
Denmark http://www.alfa-1.dk/ and www.lunge.dk
Europe European Organisation for Rare Diseases
Europe - alpha-1 http://www.alfaeurope.org/

Finland

http://www.kolumbus.fi/markku.laasonen/alfa/

France

http://alpha1-france.org

Germany www.alpha1-deutschland.de
Ireland http://www.alpha1.ie/
Italy www.alfa1at.org and info@alfa1at.org

Netherlands

http://www.astma-copd.nl/content/copd/alpha1.asp

Spain http://www.alfa1.org/
Sweden http://www.alfa-1.se/news.php
Switzerland (French-speaking) www.alpha-1swiss.ch and gvautier@worldcom.ch
Switzerland (German-speaking) www.alpha-1swiss.ch and vlahovic@tele2.ch
United States www.alpha1.org

 

 

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