alpha-1 awareness

Alpha1 Awareness Supporting FIND-A1

Find-a1 Background

The World Health Organization (WHO) recommends that all adults should be tested for Alpha1 Antitrypsin Deficiency if they present with the following problems:

  • COPD
  • Asthma
  • Family history of AAT Deficiency
  • Chronic liver disease

Other conditions not specifically recommended by WHO, but possibly indicating increased risk for AAT Deficiency include:

  • Bronchiectasis
  • Panniculitis
  • Unexplained vasculitis, particularly of Wegener’s granulomatosis type
  • Hepatocellular carcinoma
  • Any evidence of unexplained liver disease

It is important to understand that if these conditions are seen in non-smokers of any age, or if COPD occurs at an early age (age 30 to 55) in smokers, the likelihood of AAT Deficiency is increased.

A physical examination or a reading of a patient’s medical history can only identify a potential Alpha1 Antitrypsin Deficient person.  Diagnosis is made by a simple blood test.

On average, it takes seven years and three doctors for an Alpha1 patient to get an accurate diagnosis.