Alpha-1 Awareness UK is a charity formed to provide information and support to sufferers of alpha-1 antitrypsin deficiency. We maintain close links with experts and organisations associated with the condition, including European Alpha groups, pharmaceuticals and clinicians. Our primary objective is to improve the understanding of A1AT in both patients and medical professionals, as well as to provide support for Alphas and their carers.
We are registered with the Charity Commission for England and Wales (1125467) and the Office of the Scottish Charity Regulator (SC041100).
Our website provides extensive information about the condition, how it might be detected and discussion of the treatments and therapies currently available. We also offer links to more detailed information about alpha-1 antitrypsin deficiency.
If you would like to become a member of our charity and to help support Alphas and their families, please visit our membership page. Members are invited to join our forum where they will be able to read and discuss topics affecting Alphas and Alpha children, share their own opinions and receive advice and support.
- To improve the understanding of alpha-1 antitrypsin deficiency (AATD)
- To publicise AATD to medical professionals
- To work with medical and patient organisations to raise awareness of the condition
- To build a national network of patients
- To become a pressure group to increase research and the availability of successful treatments
- To develop a platform for patient support.
The Charity Board
- Alan Heywood-Jones
Chairman and Trustee
- Lin Daniels
Secretary and Trustee
- Dawn Heywood-Jones
Special Projects and Trustee
- Jeff Darkins
- Meryl Darkins
- Neil Jackson
- Emma Wooler
- Alan Wooler
- Andi Osborn
- Jackie Osborn
- Professor Sabina Janciaskiene
Hanover Medical School
- Professor David Lomas
Dean of Medical Sciences, University College London
Honorary Consultant Physician at Addenbrooke’s and Papworth Hospitals.