Alpha 1 - the Facts

BBC Health site

An explanation of alpha-1 antitrypsin deficiency on the BBC website.

Netdoctor

A good summary. Written by an gastroenterologist so the liver condition is given full prominence.

Patient UK

Fairly technical article. However the site has more on patients' experiences and links to other sites.

Mayo Clinic

USA. An American view on the condition. Links to other US sites.

Alpha 1 - Lung

British Lung Foundation

This link is to the AATD page. Look at other pages to understand more about caring for your lungs.

Emphysema COPD

Created by one man this site is quite individual but it does give plenty of advice on living with lung problems.

Child (lung) Foundation UK

AATD children do not normally have breathing difficulties caused directly by the deficiency but if you have concerns then look at this site.

Alpha 1 - Liver

Children's Liver Disease
Foundation

This link is to the Home page. Other pages that may be of interest are the accessed via the tabs such as Education Programme or Liver Units.

British Liver Trust

More information about the liver - but no mention of AATD.

Liver Transplant Support

Help by those who have been there.

Health Issues

Save Babies Through Screening Foundation

This Charity wants more screening for all sorts of conditions by heel prick testing at birth. If AAT can be detected at birth then appropriate medical and lifestyle advice can be given before much damage is done.

American sites

Alpha-1 Advocacy

..for patient support and information

Alpha-1 Association

Alpha-1 Association's mission is to identify those affected by Alpha-1 Antitrypsin Deficiency and to improve the quality of their lives through support, education and advocacy.

Alpha Net

AlphaNet's mission is to improve the lives of those affected with Alpha-1 Antitrypsin Deficiency by creating and disseminating a wide range of expert disease management services, while providing significant contributions toward research for a cure.

Alpha-1 Foundation

The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency.

Alpha-1 Kids

Alpha-1 Kids is an organisation developed by affected families and their physicians to provide information, support and awareness.

Spiderspun

...US site with Blogs, Info etc