Welcome....
....to the website of the UK alpha-1 patient group. We hope you will find this site informative. You will find information about the condition, contacts who are ready to give you more information, social and fundraising events and how to become a member of the group.
EXCITING NEWS ABOUT PROLASTIN - A REPLACEMENT THERAPY FOR ALPHA-1 ANTITRYPSIN DEFICIENCY
On Mon 9 June 2008 Prof Stockley (ADAPT, QE Birmingham and the University of Birmingham, UK) announced the results of the EXACTLE trial of Prolastin to a group of patients. Prolastin is Talecris's replacement therapy for alpha-1 antitrypsin deficiency. To the question "Does it work?" he replied "It appears so". He had already presented the results at the American Thoracic Society in Toronto in May. The next step is for publication of the research in a medical journal and then begins the process to get Prolastin licensed by NICE. For more details click here to go to the Prolastin page.
PLEASE NOTE that this website is run by patients for patients. We do our best to make the information up-to-date and accurate. HOWEVER ALWAYS consult your GP or other medical professionals.
The alpha-1 patient group is an association of people interested in alpha-1 antitrypsin deficiency. It includes patients, relatives and friends. The group has strong links with many people and organizations such as European patient groups, pharmaceuticals and clinicians.
Objectives of alpha-1 awareness
- –To improve understanding of alpha-1 antitrypsin deficiency (A1AT) by patients
- –To publicise A1AT to medical professionals through patients and PCTs.
- To link interested organizations through a website
- –To build a national networks of patients
- –To become a pressure group to increase •research and •availability of successful treatment
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